Parents and supporters raise hundreds of pounds to help find a cure for son’s muscle-wasting condition

Lex Ellison handed out leaflets and collected for the charity.

Lex Ellison handed out leaflets and collected for the charity. - Credit: Archant

The parents of a child with an incurable muscle-wasting condition raised more than £800 during a street collection in St Neots.

Lex and Lynnette Ellison, whose son Samson suffers from Duchenne muscular dystrophy, were supported by friends and staff from Keystone Marketing and Bosch Rexroth in their quest to raise vital funds for a cure for the condition.

The nine fundraisers handed out 1,000 leaflets explaining the condition, which causes the muscles to weaken. The current life expectancy in the UK is 27, but Lex and Lynnette are dedicated to finding a way that they can have longer with their son.

“Samson’s story inspires so many people to do their very best everyday,” said Lynnette.

“It is a story of hope and we are just a normal family trying to make life as good as we can for our children. We are so touched by the positive reception we had in our lovely St Neots town. People took time out of their busy days to listen to our story and we are so grateful for everyone’s generosity.”


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The family and supporters managed to raise £775.40, with a further £55 in online and text donations.

If you are a local company who would like to adopt Strong For Samson as your chosen charity contact: lynnette@actionduchenne.org or online: www.justgiving.com/fundraising/StrongforSamson or Facebook @strongforsamson.

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Lex won Fundraiser of the Year at this year’s St Neots Community Awards.

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