Huntingdonshire woman takes on London Marathon for little Zane Smith who has extremely rare brain condition

11:00 20 February 2014

London Marathon runner Jo Vasey, from Woodwalton, raising money for Cavernoma Alliance UK, with sufferer Zane Smith, from Huntingdon.

London Marathon runner Jo Vasey, from Woodwalton, raising money for Cavernoma Alliance UK, with sufferer Zane Smith, from Huntingdon.


A Woodwalton woman is running the London Marathon to raise money for Zane Smith.

Jo Vasey, 36, of Beville, will take on the 26.2-mile course on April 13 to help send five-year-old Zane to Chicago for another specialist brain scan to help him cope with a rare condition.

Jo – pictured with Zane – said: “I know Zane as his dad plays football with my boyfriend. Zane inspired me to run this marathon, and is what makes me get out of bed on a cold, horrible, miserable rainy morning to put in the legwork for my training.”

Zane, of Essex Road, Huntingdon, suffers from CCMS, a genetic mutation of blood vessels in the brain which form lesions, called ‘cavernomas’ that can haemorrhage at any time and cause a seizure, stroke or death.

To help him live with his condition, Zane must visit Dr Issam Awad at the University of Chicago once a year for a unique MRI scan which shows how his brain is affected.

INFORMATION: To sponsor Jo Vasey, visit


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